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Publications

featured publications

  • Natural history study of factor IX deficiency with focus on treatment and complications (B-Natural).

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Amy D Shapiro, Margaret V Ragni, Munira Borhany, Yasmina L Abajas, Michael D Tarantino, Katharina Holstein, Stacy E Croteau, Riana Liesner, Cristina Tarango, Manuela Carvalho, Catherine McGuinn, Eva Funding, Christine L Kempton, Christoph Bidlingmaier, Alice Cohen, Johannes Oldenburg, Susan Kearney, Christine Knoll, Philip Kuriakose, Suchitra Acharya, Ulrike M Reiss, Roshni Kulkarni, Michelle Witkop, Stefan Lethagen, Sharyne Donfield, Petra LeBeau, Erik Berntorp, Jan Astermark

  • Extended Half-Life Factor VIII/Factor IX Products: Assay Discrepancies and Implications for Hemophilia Management.

    Hamostaseologie

    Authors: Jens Müller, Georg Goldmann, Natascha Marquardt, Bernd Pötzsch, Johannes Oldenburg

  • Molecular Profiling of Liver Sinusoidal Endothelial Cells in Comparison to Hepatocytes: Reflection on Which Cell Type Should Be the Target for Gene Therapy.

    Hamostaseologie

    Authors: Osman El-Maarri, Muhammad Ahmer Jamil, Johannes Oldenburg

  • Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company.

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Charles R M Hay, Midori Shima, Michael Makris, Victor Jiménez-Yuste, Johannes Oldenburg, Kathelijn Fischer, Alfonso Iorio, Mark W Skinner, Elena Santagostino, Sylvia von Mackensen, Craig M Kessler

  • Health-related quality of life and caregiver burden of emicizumab in children with haemophilia A and factor VIII inhibitors-Results from the HAVEN 2 study.

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Maria Elisa Mancuso, Johnny Mahlangu, Robert Sidonio, Peter Trask, Marianne Uguen, Tiffany Chang, Midori Shima, Guy Young, Johannes Oldenburg, Sylvia von Mackensen

  • Quality of electronic treatment records and adherence to prophylaxis in haemophilia and von Willebrand disease: Systematic assessments from an electronic diary.

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Andreas Tiede, Santiago Bonanad, Amparo Santamaria, Georg Goldmann, Mariana Canaro, Antonio Palomero, Luis J G Frade, Juan Eduardo Megias-Vericat, Fernanda Martinez, Faustino Garcia Candel, Victor Jimenez Yuste, Monika Sparber-Sauer, Susan Halimeh, Daniela Adolf, Martin Hukauf, Jan Reichmann, Johannes Oldenburg

  • Molecular Analysis of Fetal and Adult Primary Human Liver Sinusoidal Endothelial Cells: A Comparison to Other Endothelial Cells.

    International journal of molecular sciences

    Authors: Muhammad Ahmer Jamil, Heike Singer, Rawya Al-Rifai, Nicole Nüsgen, Melanie Rath, Sascha Strauss, Ioanna Andreou, Johannes Oldenburg, Osman El-Maarri

  • Optimizing the management of patients with haemophilia A and inhibitors in the era of emicizumab: Recommendations from a German expert panel.

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Carmen Escuriola-Ettingshausen, Günter Auerswald, Christoph Königs, Karin Kurnik, Ute Scholz, Robert Klamroth, Johannes Oldenburg

  • Infiltration and Clustering of Major Histocompatibility Complex II Antigen-Presenting Cells in the Skin of Patients with Atopic Dermatitis.

    The Journal of investigative dermatology

    Authors: Wenming Peng, Bartlomiej Kwiek, Chunfeng Yu, Natalio Garbi, Jean-Pierre Allam, Johannes Oldenburg, Natalija Novak

  • Bleeding symptoms in patients diagnosed as type 3 von Willebrand disease: Results from 3WINTERS-IPS, an international and collaborative cross-sectional study.

    Journal of thrombosis and haemostasis : JTH

    Authors: Alberto Tosetto, Zahra Badiee, Mohammad-Reza Baghaipour, Luciano Baronciani, Javier Battle, Erik Berntorp, Imre Bodó, Ulrich Budde, Giancarlo Castaman, Jeroen C J Eikenboom, Peyman Eshghi, Cosimo Ettorre, Anne Goodeve, Jenny Goudemand, Charles Richard Morris Hay, Hamid Hoorfar, Mehran Karimi, Bijan Keikhaei, Riitta Lassila, Frank W G Leebeek, Maria Fernanda Lopez Fernandez, Pier Mannuccio Mannucci, Maria Gabriella Mazzucconi, Massimo Morfini, Johannes Oldenburg, Ian Peake, Rafael Parra Lòpez, Flora Peyvandi, Reinhard Schneppenheim, Andreas Tiede, Gholamreza Toogeh, Marc Trossaert, Omidreza Zekavat, Eva M K Zetterberg, Augusto B Federici