Health-related quality of life and caregiver burden of emicizumab in children with haemophilia A and factor VIII inhibitors-Results from the HAVEN 2 study.
Haemophilia : the official journal of the World Federation of Hemophilia
Authors:
Maria Elisa Mancuso, Johnny Mahlangu, Robert Sidonio, Peter Trask, Marianne Uguen, Tiffany Chang, Midori Shima, Guy Young, Johannes Oldenburg, Sylvia von Mackensen
Quality of electronic treatment records and adherence to prophylaxis in haemophilia and von Willebrand disease: Systematic assessments from an electronic diary.
Haemophilia : the official journal of the World Federation of Hemophilia
Authors:
Andreas Tiede, Santiago Bonanad, Amparo Santamaria, Georg Goldmann, Mariana Canaro, Antonio Palomero, Luis J G Frade, Juan Eduardo Megias-Vericat, Fernanda Martinez, Faustino Garcia Candel, Victor Jimenez Yuste, Monika Sparber-Sauer, Susan Halimeh, Daniela Adolf, Martin Hukauf, Jan Reichmann, Johannes Oldenburg
Bleeding symptoms in patients diagnosed as type 3 von Willebrand disease: Results from 3WINTERS-IPS, an international and collaborative cross-sectional study.
Journal of thrombosis and haemostasis : JTH
Authors:
Alberto Tosetto, Zahra Badiee, Mohammad-Reza Baghaipour, Luciano Baronciani, Javier Battle, Erik Berntorp, Imre Bodó, Ulrich Budde, Giancarlo Castaman, Jeroen C J Eikenboom, Peyman Eshghi, Cosimo Ettorre, Anne Goodeve, Jenny Goudemand, Charles Richard Morris Hay, Hamid Hoorfar, Mehran Karimi, Bijan Keikhaei, Riitta Lassila, Frank W G Leebeek, Maria Fernanda Lopez Fernandez, Pier Mannuccio Mannucci, Maria Gabriella Mazzucconi, Massimo Morfini, Johannes Oldenburg, Ian Peake, Rafael Parra Lòpez, Flora Peyvandi, Reinhard Schneppenheim, Andreas Tiede, Gholamreza Toogeh, Marc Trossaert, Omidreza Zekavat, Eva M K Zetterberg, Augusto B Federici
Outcomes in children with hemophilia A with inhibitors: Results from a noninterventional study.
Pediatric blood & cancer
Authors:
Johannes Oldenburg, Midori Shima, Rebecca Kruse-Jarres, Elena Santagostino, Johnny Mahlangu, Michaela Lehle, Nives Selak Bienz, Sammy Chebon, Elina Asikanius, Peter Trask, Maria Elisa Mancuso, Victor Jiménez-Yuste, Sylvia von Mackensen, Gallia G Levy
Origins, Development, Current Challenges and Future Directions with Activated Prothrombin Complex Concentrate for the Treatment of Patients with Congenital Haemophilia with Inhibitors.
Hamostaseologie
Authors:
Hans H Brackmann, Wolfgang Schramm, Johannes Oldenburg, Viridiana Cano, Peter L Turecek, Claude Négrier